Walk to Everest for A-T from ataxia telangiectasia Watch Video

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⏲ Duration: 1 min 71 sec
✓ Published: 10-Oct-2018
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Walk to Everest for A-T has been formed by a group of close mates in Wagga Wagga to raise awareness and much needed funds for BrAshA-T.nnnJeff and Carly Millar had never heard of Ataxia-Telangiectasia until 18 months ago when they were told by doctors that they believed their son Charlie had the rare genetic disorder. Devastated and in disbelief they would later learn that their little girl Zara, was also born with A-T.nnJeff and his mates will be doing the 12 day trek from Kathmandu to Mt Evere

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When their daughter was just two years old, Erica and Tim Rahall received heartbreaking news: their vivacious daughter Rylie was diagnosed with ataxia-telangiectasia (A-T), a super rare progressive degenerative disease. Rylie is just one of about 500 confirmed cases of A-T in the United States, and about 1000 worldwide. Despite the wretchedness of the disease, Rylie, now 9 years old, is full of joy and remains optimistic about the future. nnTo fight for Rylie and a cure for A-T, please visit: nh
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